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In the News
First patient-led cancer registry launches with support from Altron Karabina on World Cancer Day. The partnership leverages Microsoft technology to support and empower individuals living with cancer.
SA woman creates first patient-led cancer platform. Living with Cancer is the first patient-led cancer registry platform to provide support and information to those with cancer in SA.
How technology can transform cancer care and support in South Africa.
Microsoft South Africa and NPO Living with Cancer have partnered to build and strengthen the capabilities of South Africa’s first patient-led cancer registry using cloud computing platform Microsoft Azure.
Remembering Dr Elvira Singh, the gentle giant behind the National Cancer Registry. With capable leadership and guidance, Elvira Singh revitalised the National Cancer Registry, effectively dealing with the backlog that negatively affected its image as a reputable registry. She also developed the first urban population-based cancer registry in South Africa, in the City of Ekurhuleni, with the first report published in 2018.
Living with cancer and hope – Living with Cancer support group aims to create awareness and get the in-patient cancer registry up and running. Living with Cancer founder Belinda Wagner hopes to inspire cancer patients to speak their truth as she journeys to revive the South African in-patient cancer registry.
SA patient-led cancer registry aims to close data gaps
Patients will be able to upload details of their cancer diagnosis on the website, and the data will be shared with the national cancer registry.
We hear how Belinda Wagner, a life coach, facilitator, lecturer and marketing consultant, ensured her diagnosis of angiosarcoma would not take control of her life.
Microsoft South Africa and NPO Living with Cancer announced today that they have partnered to build and strengthen the capabilities of South Africa’s first patient-led cancer registry using cloud computing platform Microsoft Azure.
How technology can transform cancer care support in SA. Living with Cancer is aiming to get one million people living with cancer in SA registered on the patient-led cancer registry in 2022.
CANSA - Patient Led Cancer Registry
When Belinda Wagner was diagnosed with angiosarcoma, in 2016, she looked for information to help her navigate the challenges that lay ahead. “When I searched online, I found the South African National Cancer Registry (NCR). Although this was a valuable resource, angiosarcoma was not listed at the time,” she explains.
SA’s cancer data has significant gaps – now patients can help fix it
Cancer patients and other members of the public now have an opportunity to contribute to improving the quality and completeness of cancer data in South Africa. This follows the recent launch of a new patient-led cancer registry. The project is a joint initiative of Living with Cancer (LWC), an NGO, and the existing National Cancer Registry (NCR) housed in the National Institute of Communicable Disease (NICD).
Video: eNews Channel Africa Cancer Survivors Day Interview
Celebrating Survivors and Inspiring the Newly Diagnosed.
Cancer is one of the greatest tests of the human spirit. In this Cancer Survivors Day broadcast, eNews interviews Belinda Wagner (founder of Living with Cancer) on her journey to creating South Africa’s first patient-led cancer registry. Through her own journey of battling with cancer, Belinda was motivated to establish a platform where cancer patients can get the support they need. The registry provides a powerful community platform for people who have been diagnosed with any type of cancer, and who are in different stages of their cancer journey. The site allows users to capture and track their journey by constantly updating information such as diagnosis, date of diagnosis, stage, and well-being status.
Interview with Belinda Wagner – how Belinda ensured her diagnosis of a rare cancer angiosarcoma would not take control of her life dream to build a patient led cancer registry.
THE VOICE OF CAPE
February is National Cancer Prevention Awareness Month. Belinda Wagner is a facilitator, marketing consultant and life coach who was diagnosed with a rare cancer called Angiosarcoma and due to lack of information online, she decided to open up a patient-led registry for people living with cancer.
SAFM 104 -107
South Africa’s only national news and talk radio station SAfm, using the frequency 104-107 across the country, interviewed Living with Cancer’s founder Belinda Wagner on 15 February 2021, at 21h15. Songezo Mabece, who hosts The View Point show which is on air Monday to Thursday between 8pm and 10pm, interviewed Belinda to learn more about the organisation that oversees the country’s first patient-led cancer registry.
New cancer alliance launched to address surveillance gap ahead of World Cancer Day
In anticipation of World Cancer Day, the National Cancer Registry, a department within the National Institute of Communicable Diseases (NICD), has partnered with the advocacy group ‘Living with Cancer South Africa’ to introduce the first-ever patient-led cancer registry. LISTEN to the full interview with Ml Junaid Kharsany, Dr Mazvita Muchengeti from the NICD, and Belinda Wagner from Living with Cancer, here.