FREQUENTLY ASKED QUESTIONS

CAN SOMEONE REGISTER ME ON MY BEHALF?
  • You may appoint someone to complete the information on your behalf
WHAT DOES LIVING WITH CANCER DO?
  • A platform for all people who have been diagnosed with any type of cancer and are in different stages of their cancer journey
  • We are a support group to anyone requiring support during their cancer journey
  • We have a patient-led cancer registry to assist with supplying valuable information to organisations that would utilise the information to gain a deeper understanding of the cancer crisis in our country and to make informed decisions about the distribution of resources.
HOW DO YOU GET IN CONTACT WITH SOMEONE FROM LIVING WITH CANCER?

  • See our contact details page that includes email, WhatsApp group and contact number

WHAT KIND OF SUPPORT DOES LIVING WITH CANCER PROVIDE?
  • WhatsApp support
  • Support meetings
  • Information source
  • Network collaboration
WHAT MAKES THIS REGISTRY DIFFERENT FROM ANY OTHER?
  • It is patient-led, so the information is sourced from the patient and not medical and pathology institutions
WHO WILL HAVE ACCESS TO THE INFORMATION IN MY PROFILE?
  • Personal details will be kept confidential. If the scientists or medical practitioners would like to contact the individual, permission will be obtained prior to sharing any information
WHAT WILL THE INFORMATION BE USED FOR?
  • Data will assist in understanding where the effort of the various initiatives and programmes should be focused
  • Provide insight as to the focus on investment for cancer treatment and supportive care
  • Understand high risk cases for example: age groups, sex, geographical locations
  • Focus of resources to assist with decision making regarding equipment purchases
  • End point of cohort studies and clinical trials
  • Statistics for funding of support groups
  • To raise awareness especially for rare cancer types
  • Decision making on areas of support
  • Assist with navigating the cancer journey
  • Research funding for scientists
  • Supply the data to CANSA to assist them with understanding how best to allocate their resources for the patient. This will provide insight to the patient on how best to cope and therefore support their journey
  • Provide information to pharmaceutical companies for potential cures
  • Your name will never be disclosed. Your medical data will be part of a collective data pool, with the sole purpose to better understand the cancer landscape in South Africa
ARE THERE ANY FEES PAYABLE TO BE ON THE REGISTRY?
  • There are no fees payable to be part of the first patient-led cancer registry.
WHAT BENEFITS ARE THERE TO BEING ON THE REGISTRY?
  • The current Government-led cancer registry only includes the Ekurhuleni region, does not include all types of cancer and only contains data collected through traditional channels such as pathologist, medical insurance, hospital, Hospice and oncology reports

  • As this registry is patient-led and data can be captured using a mobile application, it can cover all types of cancer and all geographic locations within South Africa

  • The registry contains real-time data thus making it more easily accessible and accurate

  • The registry will assist with the collection, storage, analysis and reporting of the data, which will provide information on the incidence of cancers across all populations, age groups, genders and geographical locations

The Legacy of Love Memorial Wall for Those Who Fought Cancer is a heartfelt tribute and digital sanctuary created to honour the cherished memories of individuals who bravely battled cancer. At Living With Cancer, our mission extends beyond providing support to patients and families; it encompasses preserving the legacies of those who have touched our lives. This virtual memorial serves as a platform where people can share their stories, memories, and reflections of loved ones lost to cancer. By submitting their stories to our blog, individuals can immortalise the enduring impact of their loved ones' lives and offer solace to others who may be navigating similar journeys. As a non-profit cancer support group dedicated to closing the gap and combating the cancer crisis in South Africa, we recognise the importance of preserving these legacies of love as a beacon of hope and inspiration for future generations. Together, through storytelling and remembrance, we strive to cultivate a community of support, resilience, and compassion in the face of adversity.

LINK TO OUR HERO'S TRIBUTE